Susanne De Goeij | Netherlands
I am Susanne and was born in 1986 and I have had HS since I was 13 years old. It started on my shoulders and back and it took many years before I got the right diagnosis. A few years ago I learned there was a treatment called Phage therapy. After 2 years of research, talking to scientists, doctors and patients that use phage therapy I decide to try for myself. I flew to Tblisi to the Eliava Phage Therapy Centre were phage therapy is already available for HS patients. I started treatment that I continued from home after 2 weeks in the clinic. I am also part of a study in the Netherlands on the effect of this treatment on HS and the microbiome. The results on my HS so far are amazing!
Now I am a HS advocate with a few goals:
1: Create HS Awareness
2: Changing the HS information that is available to factual information
3: Awareness for phage therapy and to make phage therapy available for HS patients all over the world